Freya's Story

On the 9th of September 2025 following episodes of nausea, headaches, daily morning vomits and unsteadiness our then 5 year old daughter Freya was diagnosed with a rare and aggressive brain tumour known as Atypical Teratoid Rhabdoid Tumor (ATRT).

Following an MRI at Worcester royal hospital we were blue lighted to Birmingham children’s hospital where she had tests, scans and meetings with surgeons before enduring a 12 hour surgery to remove the tumour from her brain on the 12th of September 2025.

The surgery itself was difficult but because of the tumours location Freya developed posterior fossa syndrome meaning she was unable to walk, talk or swallow.

Freya has faced months of neuro rehabilitation alongside speech and language, physiotherapy and occupational therapy and we couldn’t be any prouder of the progress she has made in this time.
She is now talking, walking with support and able to eat a varied diet.

Freya’s treatment protocol has been extremely intense and has consisted of multiple surgeries, 12 rounds of chemotherapy and 30 sessions of proton beam therapy which we had to relocate to Manchester for.

Freya has been an inpatient for the majority of her treatment, meaning we’ve spent a lot of time in numerous hospitals often away from our 13 year old son Oscar and all our family and friends and she’s sadly had to miss out on a year of school.

Freya completed her brain cancer treatment in May and although things have felt a little more normal since then it is very much a new kind of normal for us all and seemingly revolves around 3 monthly MRI scans and various appointments.

Our priority going forward is to spend as much time together as we can and make lots of lovely family memories!

We really couldn’t be any prouder of our darling girl…she’s fought every battle with a smile and sheer determination! She’s our warrior 🩷

Huge thank you to everyone involved at BSF with this break away