Cade's Story
Cade's family visited the Cotswolds in June 2025.
Cade was born with an extremely rare brain condition called vein of Galen malformation (VOGM)
He started having seizures and extreme SVT at 1 week old. After having an MRI scan at 3 week old in NICU, we were giving the diagnosis and transferred to Great Ormond street for brain surgery.
We spent the first two month of his life in hospital away from home and continued to spend most of his life in and out of hospital.
Cade underwent 3 successful operations in the first 6 month of life.
He later developed hydrocephalus and had emergency surgery. Followed by two more within the space of a week.
Cade was recovering well and we were due to go home, when he had an unexpected bleed 48 hours after surgery. 3 days later we were told there was nothing more they could do for Cade. We decided to withdraw all medical intervention, We couldn’t watch our baby suffer any longer.
Cade sadly padded away 40 hours later on 26th March 2025 at 10 months old, leaving behind his older sibling, Sol (4yrs) who was so proud to be Cade’s big bother.
Thank you to Bens foundation for this break.