Danny's Story

Back in August 2024 Danny’s started to have intermittent swelling and discomfort in his right lower leg. This could stay for a week or so, and by the time he got an appointment to be seen the swelling would go down, and it was thought to be a sprain,

Fast forward to November 2024 when the flare up got so bad he couldn’t walk on his leg, an Out of Hours GP saw him, said it wasn’t a blood clot, and needed to be seen by a bone doctor and needed an MRI,

Unfortunately this never got booked,

End of December 2024 and Danny went on a flight to visit family in Ireland, on his return his leg was in agony, it was red, hot to touch, and had swollen bigger than any other flare up, back to the doctors,

12th January 2025 his leg was still swollen, he still couldn’t mobilise on it, he had an ultrasound to check for an blood clot - this was negative, it was our youngest daughters 2nd birthday and Danny couldn’t cope, with the pain, discomfort, swelling, unable to mobilise, so he booked a private mri scan of his leg for £350.

17th January 2025, Danny received an email report from his scan, they’d found a tumour in his lower right leg, the tumour was 9cm x 6cm x 4.5cm, and he was referred for a 2WW through the NHS.

After that it was all very rushed 2 weeks initial consultant, MRI, X-ray, Bloods, referral to Stanmore, more MRI’s, CT, X-ray, bloods, Biopsy, then he was referred to UCLH, then they decided Churchill - Oxford would be closer / easier for us.

Oxford then wanted more tests, so repeated all of the above, and Danny was called in it was confirmed a Ewings Sarcoma, which was in the smaller bone in his leg, and had broken out for he bone into the soft tissue.

He is now on round 7 of VDC/IE chemo (he should of been on 11, however there’s been a lot of complications), his 5th PICC line, to many infections to count,

The plan is 14 rounds of chemo, 6 weeks of radiotherapy (to start on round 8 of chemo), then surgery where there hopeful they can save the leg, but it’s pretty certain he’ll have drop foot, then potentially more chemo and radiotherapy after surgery.

Still a long road ahead, but we’re hopeful!

We’re so grateful for a break, a chance to take out three young girls somewhere they can be kids for a week, rather than carers helping their dad!