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Elliott's Story

Elliott's family visited the Lodge in May 2023.

Here's our story:

Our little boy Elliott was aged 4 when he was diagnosed with stage 4 Very High-Risk Metastatic Embryonal Rhabdomyosarcoma in October 2021. The prominent tumour was in his right jaw with intra-cranial extension, and had spread to his lungs, ribs, hips, and left femur.

He responded well to frontline treatment, and was started on maintenance chemotherapy in June 2022, but relapsed in August 2022. After 6 weeks of second line treatment were unsuccessful, and with the pace at which the recurring tumour was growing, there were no effective treatment options left. Elliott began palliative care in November, and went to heaven on 1st December 2022.

He was our only child and our absolute world and his loss has left an unfillable hole. Elliott was a bright, funny, loving, tenacious little person who loved his life. He was so strong and resilient, but this cancer took him despite everything being done to save him by the teams at John Radcliffe Oxford and UCLH. All we can do now is remember him by trying to do something positive to help find a cure for this specific childhood cancer which we will do through fundraising for Rhabdomyosarcoma.

Thank you so much BSF for allowing us a few days away, so very grateful, Aimee and Chris, Elliott's mum and dad x

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